Monday, June 28, 2004

Not doing great - but doing okay...

We had surgery done in town a while back and the doctor did not give Miriam a shot of Steroids like he was supposed too � so she has been in a lot of pain and is spending a lot of the day covering her head saying that her eye hurts.

We are waiting for Iowa City to get back to us on a plan for her to come there and get the proper care because neither times she has received care here in Sioux City has it been done correctly.

Miriam is a sweet little girl who likes to play and when you only get a few hours of the day to play with out pain you tend to get very cranky - so she is prone to throwing the occasional fit now and again.
It is heartbreaking to watch her stumble over things trying to get around with her eyes closed.

I want so much for my little girl to be all better.

Friday, May 28, 2004

Bad News

Today we learned that Miriam's retina is now fully detached except the area they repaired before. She is going in for surgery again this afternoon but the outcome does not look good.

They are telling us now that she will loose sight in her eye and that when she turns 12 she will probably need it removed and have a prosthetic so that she can have a normal appearance to her face.

9 years leaves a lot of time for God to heal her - but our prayer is it happens today :-)

Please keep Miriam in your prayers, she needs it.

Tuesday, May 18, 2004

Minor surgery today - at least it was local

The Doctor here in Sioux City removed a stitch and gave Miriam a shot in hope that it will help her headaches.

For about a week she has been holding her head a lot and asking to go to "Iowa City, so the Doctor can fix my eye". We were concerned over the weekend she may have an infection hence today's operation.

Doctor says the eye looks good and seems to be healing well, but Miriam is still having some headaches.

Friday, May 14, 2004

Doing good...Sorry this took so long

I apologize I have not updated this in a while things have been rather busy. Miriam is doing well, although we do not know whether she can see or not; she likes to tell people that a stick flew up and tore her eye and now it doesn't work this could just be 3 year old logic.

She also asks every hour if she can go to Iowa City and get her eye fixed.

Again we are up in the air until her next surgery on the 28th of May.
Jennie and I are having a really tough time putting her drops in  she screams bloody murder and clamps her eye shut forcing us to have to pin her down and pry it open and pray we get the right amount in.

It can be a very heart wrenching experience.

On a positive note our insurance is now fully approved and they will now be bearing the load of a good percentage of the bills.

Well, I will keep this updated a little better from now on - I will try to update it on Fridays from now on unless something happens in between.